Resources
Beyond Medical Stability
Curated resources for clinicians, researchers, media practitioners, students, and families exploring childhood brain tumor survivorship and life beyond treatment.
Explore resources by topic
Clinical Care
Guidelines & follow-up
Research
Evidence & statistics
Media & Storytelling
Ethics & communication
Families & Students
Support & learning
Clinical care & survivorship
Survivorship Guidelines
Children’s Oncology Group
Clinical follow-up guidance and long-term effects of childhood cancer treatment.
Late Effects
National Cancer Institute
Information on potential long-term physical, emotional, and learning effects.
Research & evidence
Central Brain Tumor Registry of the United States (CBTRUS)
cbtrus.org
U.S. brain and central nervous system tumor statistics and research.
Media & ethical storytelling
Code of Ethics
Society of Professional Journalists
Guidance on accuracy, minimizing harm, and ethical representation.
Clear Communication Index
CDC
Framework for clear and accessible public-health messages.
Families, caregivers & students
Educational Tools
Pediatric Brain Tumor Foundation
Family and childhood brain tumor education and survivorship resources.
Together by St. Jude
together.stjude.org
Accessible information and support for families affected by childhood cancer.
Links are provided without tracking parameters. Resources are educational and do not replace individualized medical advice. Inclusion does not imply endorsement.